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Intellectual Disability SC Support Groups 

 

INTELLECTUAL DISABILITY AND RELATED DISABILITIES


 
 

able SOUTH CAROLINA

136 Stonemark Lane, Suite 100
Columbia, SC 29210
Phone: 1-800-681-6805
TTY: 1 (803) 779-0949
Home Page: www.able-sc.org

• Able SC is a Center for Independent Living (CIL), an organization not about “helping” people with disabilities, but build on the central concept of self-empowerment. It’s a consumer-controlled, community-based, cross-disability nonprofit that provides an array of independent living services.

 

American Association on Intellectual and Developmental Disabilities (AAIDD)

444 North Capitol Street NW, Suite 846
Washington. DC 20001-1512
Phone: (202) 387-1968
Fax: (202)387-2193
Toll-free: 1-800-424-3688
Home Page: www.aaidd.org

• promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

 

Arc of Horry County

820 Surfside Drive
Surfside, SC 29575
Phone: (843) 286-3040
Fax: (843) 286-3044
Home Page: www.arcofhorry.org
E-mail: arcofcoastal@aol.com

• advocacy organization that provides information, training and support to people with intellectual disability and their families. An all volunteer organization.

 

Arc of Pickens County

P.O. Box 1308
Easley, SC 29641
Phone: (864) 859-5416
Fax: (864) 859-1157
Email: hleonardo@pcbdsn.org

• advocacy organization that provides information, training and support to people with intellectual disability and their families.

 

Arc of South Carolina

806 12th Street
West Columbia, SC 29169
Phone: (803) 748-5020
Fax: (803) 750-8121
E-mail:
thearc@arcsc.org
Home Page: www.arcsc.org

• Advocacy organization that provides information, training and support to children and adults with special needs, including intellectual disability and related developmental disabilities, and their families.

 

Brain Injury Alliance of SC

800 Dutch Square Blvd., Suite B-225
Columbia, SC 29210
Phone:    (803) 731-9823
Fax:        (803) 731-4804
Toll-free: 1-877-824-3228
Home Page:
www.biausa.org/SC
E-mail:
scbraininjury@bellsouth.net

• offers TBI information and resources, support groups, prevention materials and awareness events, advocacy, statewide conferences and workshops for individuals living with TBI, caregivers and the general public.

 

Burton Center Foundation

2605 Hwy 72/221 East
Greenwood, SC 29649
Phone: (864) 942-8900
Fax: (864) 942-8945

• raises funds to meet special needs of people served by the Burton Center where no other funds are available.

 

Caring Connection MUSC Developmental Pediatrics

135 Rutledge Avenue
Charleston, SC 29425
Phone:    (843) 876-1505
Fax:        (843) 870-1518
Toll-free:  1-800-424-6872 ext. 6-1505
Email:     
cranwela@musc.edu

• a network of support for parents and families who have a child with special needs (physical or developmental)

 

Dorchester Board of DSN

Consumer Review Committee
PO Box 2950
Summerville, SC 29484
Phone: (843) 552-5444
Fax: (843) 552-7879
Email:
jerryrog@cris.com

• provides support to people with disabilities and their families.

 

Dorchester County DSN Advocacy Group

P.O. Box 2950
Summerville, SC 29484
Phone: (843) 871-1285
Fax: (843) 871-2929
Email:
richardsoncm@bellsouth.net

• Self advocates meet monthly. Participate in QAIQP by way of satisfaction surveys. Many social/recreational activities, conferences, fund-raisers.

 

Down Syndrome Association of the Lowcountry

295 Seven Farms Drive
Suite C-190
Daniel Island, SC 29492
Phone: (843) 553-3725 (DSAL)
Fax: (843) 471-2996
Home Page:
www.dsalowcountry.org
Email: chad@danielislandmedia.net

• provides advocacy and information to people with Down syndrome and their families.

 

Down Syndrome Family Alliance of Greenville

29 North Academy Street
Greenville, SC 29605
Phone: (864) 282-0167
Home Page:
www.dsfag.org

• provides family and individual support; conducts community awareness activities; monthly meetings.

 

Family Connection of SC Inc.

2712 Middleburg Drive, Suite 103B
Columbia, SC 29204
Phone:
Toll-free: 1-800-578-8750
Columbia (803) 252-0914
Aiken (803) 649-7981
Anderson (864) 231-8100
Charleston (843) 740-5500
Florence (843) 662-0675
Greenville (864) 331-1340
Rock Hill (803) 366-4839
Spartanburg (864) 560-1476

Fax:
Columbia (803) 799-8017
Aiken (803) 649-2248
Anderson (864) 260-0252
Charleston (843) 747-7222
Florence (843) 664-2656
Greenville (864) 331-1343
Rock Hill (803) 981-1906
Spartanburg (864) 560-1472

Email:
info@familyconnectionsc.org
Home Page: www.familyconnectionsc.org

• a network of parents working with community professionals to provide parent-to-parent support and assurance to families with children of all ages who have developmental delays, disabilities or special health care needs.

 

Fairfield County DSN Advocacy Group

410 W. Washington Street
P.O. Box 367
Winnsboro, SC 29180
Phone: (803) 635-2154
Fax: (803) 635-8052
Email:
shirleykennedy114@yahoo.com

• Fairfield Winners is the self-advocacy organization for Fairfield County Disabilities and Special Needs Board located in Winnsboro, SC. Fairfield Winners meets on the 3rd Thursday of each month at 1:30 p.m. at 410 W. Washington Street in Winnsboro. Fairfield Winners sponsors fund-raising activities, promotes community inclusion, supports diversity of interests within the organization, supports individual self-advocacy, addresses rights and personal choice issues, seeks support from community and local politicians, and sponsors social and recreational activities. Members are involved in the Safety-Risk Management Committee.

 

Florence County DSN Self-Advocacy Council Our Voices Count Too

1211 National Cemetery Road
Florence, SC 29506
Phone:         (843) 667-5007 ext. 331
Fax:             (843) 678-8573
Toll-free:       1-800-340-4028
Home Page: 
www.fcdsn.org
Email:           gsingletary@fcdsn.org

• provides support and advocacy to people with disabilities and to their families, promoting independence and speaking up for people with disabilities.

 

Friends of Persons with Disabilities

PO Box 30
Rock Hill, SC 29731
Phone: (803) 628-5999
Fax:     (803) 628-7984

• provides support to people with disabilities and their families.

 

Georgetown DSN Board

P.O. Box 1471
Georgetown, SC 29442
Phone: (843) 546-8228

• provides support to peiople with disabilities and their families.

 

Greenwood Genetic Center

Regional Genetics Clinics
101 Gregor Mendel Circle
Greenwood, SC 29646
Phone: (864) 941-8160
Fax: (864) 941-8114
Toll-free: 1-888-442-4363
            (1-888-GGC-GENE)
Home Page:
www.ggc.org

• a nonprofit organization that delivers comprehensive genetic services and counseling; provides up-to-date genetic education; conducts genetic research.

 

IMPACT SC Self-Advocacy Council
(Individuals Motivating People to Achieve Change in South Carolina)

The Self-Determination Project
Center for Disability Resources
USC School of Medicine-Dept. of Pediatrics
Columbia, SC 29208
Contact Person: Kristi Hartwell, Program Coordinator
Phone: (803) 935-5947
Fax: (803) 935-5001
Toll-free: 1-866-697-0732
E-mail: 
Kristi.Hartwell@uscmed.sc.edu

• IMPACT SC is South Carolina's statewide self-advocacy council with representatives from various counties throughout the state. The council seeks to encourage and motivate persons with disabilities to work together for systems change and inclusion in all areas of their lives.

 

Jasper DSN Board Family Support Group

P.O. Box 747
Ridgeland, SC 29936
Phone: (843) 726-4499
Fax: (843) 726-4091

• provides supportive services to people with disabilities and their families.

 

Kershaw County DSN Self-Advocacy Group
People on the Go in Kershaw County

P.O. Box 310
1619 Jefferson Davis Highway
Camden, SC 29020
Phone: (803) 432-4841
Fax: (803) 424-2280
E-mail:
sjett@kcbdsn.org

• self-advocacy group for adults with disabilities who are served by the Kershaw County Board of Disabilities and Special Needs and focuses on vocational issues affecting adults with intellectual disability, autism or brain or spinal cord injuries.

 

Laurens County Special Needs Foundation

P.O. Box 735
Laurens, SC 29360-0735
Phone: (864) 682-2314 Ext. 30
Fax: (864) 682-2397
Email:
jtavenner@lcdsnb.org

• advocacy organization that provides information, training and support to people with intellectual disability and their families.

 

Marion-Dillon Parent Guardian Association

3428 Maiden Down Road
Marion, SC 29571
Phone: (843) 423-2201
Fax: (843) 423-0857

• provides support to people with disabilities and their families.

 

Marion-Dillon Foundation Board

P.O.Box 1082
Marion, SC 29571
Phone: (843) 774-6775
Fax: (843) 774-0927
E-mail:
dthompson@mddsn.org

• provides support to people with disabilities and their families.

 

Marlboro DSN Board
Consumer/Family Organization

P.O. Box 1212
109 Glen Street
Bennettsville, SC 29512
Phone: (843) 479-1882
Fax:     (843) 479-0655

• provides support to people with disabilities and their families; early intervention; respite care; summer services.

 

Now Hear This
Chester County Self Advocacy Group

P.O. Box 246
Chester, SC 29706
Phone: (803) 581-1091
Fax: (803) 581-2642
E-mail:
nbramlett@cldsn.org

• Now Hear This is the self-advacacy group for Chester County and promotes independence, information and community involvement. The group is made up of individuals who have special needs and autism and meets monthly.

 

Open Arms Fantasy
Hampton County DSN Advocacy Group

Open Arms Fantasy
Post Office Box 128
Hampton, SC 29924
Phone: (803) 943-4818
Fax: (803) 943-3322
E-mail:
suzyhenderson2002@yahoo-com

• Open Arms Fantasy of the Hampton County DSN Board is a self advocacy group of individuals who raise funds to participate in activities and set future goals for themselves to reach their full potential.

 

Orangeburg DSN Board
Consumer/Family Council

1448 Henley Street NE
Orangeburg, SC 29115
Phone: (803) 536-1371

• provides support to people with disabilities and their families.

 

PACT for Disabilities
Kershaw County DSN Board

P.O. Box 310
Camden, SC 29020
Phone:   (803) 432-4841
Fax:       (803) 424-2280

• provides support to people with disabilities and their families.

 

Parents and Everyone for Exceptional People (PEEP)
Sumter County DSN Board

750 Electric Drive
Sumter, SC 29153
Phone: (803) 778-1669 ext.119
Fax: (803) 775-9194
E-mail:
slbrown2@ftc-i.net

• provides support to people with disabilities and their families.

 

Parents and Guardians Association

Coastal Regional Center
9995 Jamison Road
Summerville, SC 29485
Phone: (843) 821-5809
Fax: (843) 821-5894

• a nonprofit organization that advocates for all people with developmental disabilities. Maintains an interdenominational chapel for people with disabilities served by Coastal Regional Center.

 

Parents Reaching Out to Parents of SC, Inc. (PRO-Parents)

652 Bush River Road, Suite 203
Columbia, SC 29210-7537
Phone:            (803) 772-5688
Fax: (803) 772-5341
Toll-free: 1-800-759-4776
Email:
proparents@proparents.org
Home Page: www.proparents.org

• a private nonprofit organization that provides information and training about education to families of children with all types of disabilities.

 

Partners in Policy making

652 Bush River Road, Suite 203
Columbia, SC 29210
Phone: (803) 772-5688
Fax: (803) 772-5341
Toll-free: 1-800-759-4776
Home Page:
www.proparents.org/pip.html

• Leadership training program for parents of children with developmental disabilities and adults with disabilities that teaches them how to be effective advocates with policymakers and how to advocate for systems change. PIP is a project of the SC Partnership of Disability Organizations and is administered by PRO-Parents. The project is funded through a grant from the SC Developmental Disabilities Council.

 

People on the Go - Self-Advocacy Organization

The Arc of South Carolina
806 12th Street
West Columbia, SC 29169
Phone: (803) 748-5020
Fax: (803) 750-8121
E-mail:
thearc@arcsc.org
Home Page: www.arcsc.org

• Self advocacy organization that provides information and training on effective self advocacy and self determination for adults with special needs, including developmental disabilities; focuses on leadership, choice, and full inclusion in the community.

 

People Power
Sumter County Disabilities and Special Needs Board

P.O. Box 2847
Sumter, SC 29151
Phone: (803) 778-1669, ext. 110
Fax: (803) 775-9194
E-mail:
patlordy@hotmail.com

• self-advocacy group open to adults with intellectual disability, autism or head and spinal cord injuries. Their mission is to help people with disabilities know they are valuable through community education and inclusion, working together to obtain jobs and access to the community and to be treated with dignity and respect.

 

Reaching for the Stars Self-Advocacy Group
Midlands Center

8301 Farrow Road
Columbia, SC 29203
Phone: (803) 935-5729
Fax: (803) 935-7678
E-mail:
mheath-cherry@ddsn.sc.gov

• self-advocacy group for residents of Midlands Center, a residential facility for the SC Department of disabilities and Special Needs' most fragile consumers. Consumers advocate for changes in their environment.

 

Saleeby Center Parents Council

335 Stuckey Street
Sumter, SC 29150-5569
Phone: (803) 773-4128

• provides support to people with disabilities and their families.

 

SC Down Syndrome Conference

P.O. Box 50466
Columbia, SC 29250
Phone:  (803) 212-4757
Fax:      (803) 212-4781

• a nonprofit organization that works to promote the well-being of people with Down syndrome in SC; provides information and sponsors a biannual statewide family conference.

 

Self-Advocacy Advisory Committee - Whitten Center

PO Box 239
Clinton, SC 29325
Phone: (864) 938-3422
Fax:     (864) 938-3115
Email:  
pturner@ddsn.sc.gov

• provides opportunity for residents to learn self-advocacy skills and address issues affecting people receiving services.

 

South Carolina Parents and Advocates for Developmental Disabilities (SCPADD)

200 Marabou Circle
West Columbia, SC 29169
Phone: (803) 791-1707
Fax: (803) 791-0983

• parents and advocates who promote the well-being and safety of people with developmental disabilities living in SC regional centers. SCPADD is made up of parents and guardians in SC whose children/family members live in the state's regional centers.

 

South Carolina Partnership of Disability Organizations

806 12th Street
West Columbia, SC 29169-6142
Phone: (803) 750-6988
Fax: (803) 750-8121
Toll-free: 1-800-438-4790
Email:
scas@scautism.org

• a collaborative of volunteer disability advocacy organizations joined together in partnership to provide leadership in advocacy on critical issues affecting lives of people with disabilities and their families. Member organizations include the Brain Injury Association of SC, SC Autism Society, SC Brain Injury Alliance, SC Spinal Cord Injury Association and The Arc of South Carolina (intellectual disability).

 

Special Olympics South Carolina

1276 Assembly Street
Columbia, SC 29201
Phone: (803) 772-1555
Fax: (803) 772-0094
Toll-free: 1-800-765-7276
Home Page:
www.so-sc.org
E-mail: smaner@so-sc.org

• provides year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendships with their families and other Special Olympics athletes in the community.

 

Tri-Development of Aiken County, Inc
Friends for Action

PO Box 698
Aiken, SC 29802
Phone: (803) 642-8859
Fax: (803) 642-8806
Email:
Director@aikentdc.org
Home Page:
aikentdc.org

• a self-advocacy group for people with disabilities.

 

VOR

836 S. Arlington Heights Rd. #351
Elk Grove Village, Illinois 60007
Phone: (877) 399-4VOR
Home Page: http://www.vor.net/

• VOR is a national organization that advocates for high quality care and human rights for people with intellectual and developmental disabilities.